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Cancer Update:

Pegasus69

Pegasus69

JUB Addict
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Just got back from Boston and saw the Neurosurgeon as well as the Radiation Oncologist. They are sure that there is a lesion in the right cerebellum (just behind and slightly below the ear) and is on the outer portion. There is some question as to whether there is one in the upper front lobe or not. So, here is the plan.... I am having a pet scan tomorrow and will overnight the disk to Boston. I will get the results from my medical oncologist on the pet scan on thursday, if that goes well then I am going to call up to the folks in Boston and tell them I want to go ahead with Cyber knife procedure (as opposed to conventional brain surgery). Conventional surgery has a success rate of 98% of removing all of the lesion whereas the Cyber Knife procedure has a 95% success rate minus all of the possible complications of conventional surgery as well as a hell of a lot quicker recovery time (it is done outpatient and I miss the following day of work).

Once they get the call to go ahead with this I have to be scheduled for another MRI, this time with smaller slices for the picture to get a better detail and to determine if there is a lesion on the front lobe or not, I will also need another ST scan. If all goes well I should be able to have the procedure done by the end of next week or early the week after.

I will be going to Connecticut this weekend to talk with my sisters,provided they will both be in town. I think I am dreading that more than anything else right now.

So, it is just a matter of more testing to see exactly where I am at with all of this. Keep the good vibes going guys and gals.

Thanks and with love

Steve
 
My best wishes and hopes for you, in all of this ordeal, continue at their utmost. I haven't spent much time in JUB the past several weeks (and, when I have, I've spent most time reading CE&P, and not necessarily posting). I'm trying my best to get back into the "habit" of praying, something that's eluded me since mid-spring or so. I think we're unified in hoping that your news, in the coming days, is
the best possible under the circumstances. Thank you for keeping in touch with us through your gruelling odyssey. These hugs are healing ones, and I hope that they effectively do their job, Pegasus. Thank you for showing us courage as well.

(*8*) (*8*) (*8*) (*8*) (*8*) (*8*)

Just an aside, I was at a big get-together of geeks in rural shoreside
S.E. Wisconsin (yes there's more there than Milwaukee and Kenosha) on August 19, and the sky was nice and clear that night. A guy pointed out several constellations, and he kept mentioning ALL of the very few that I already knew: Ursa Minor and Major, Cassiopoeia...couldn't show Orion because it's not there in August mid-evening. And he pointed out ONE (and only one) that I didn't know how to find: PEGASUS. So "you're" on the short-list of constellations that I can locate in the sky. I don't even know how to find "my" LEO, which is my sign...
 
Steve,

It does indeed sound like the right choice. Please keep us informed... and try not to fret too much about your visit to Connecticut. You have enough on your mind. Your family needs to be supportive of any decision(s) that you make.

Lots of Love,
John (*8*)
 
Steve, it sounds like you've made a good decision in choosing the cyber knife surgery. I wish you the best of luck!(*8*) (*8*)
 
This is all preliminary mind you. Much rests on the results of the PET scan tomorrow. If it has spread into the bones or other organs then I have to rething the plan. The big thing I want to avoid being involved is the liver. I have been told that if that does become involved then it is pretty much just a matter of time. But those questions will be answered soon enough. Thanks again for all the support. By the way, pharacology has been instrumental in my not totally loosing it, between the pain meds as well as the anti-anxiety meds it is all good.
 
steve

i have every confidence that you made the best decision based on ALL available information. just know that there's at least one left (california) coaster who has you in their thoughts and is sending every positive thought he can generate your way.

Good Fortune my friend.

mike
 
Steve,

Glad to hear that you are remaining positive!..|
You have a lot of friends and support on Jub
and I will keep you in my thoughts and prayers!

Get well my friend!(*8*)
 
While I am at it..... I am trying to figure out a way that is tactful and not alarming to make arrangements to get my sisters together at the same time to tell them the news. I am thinking about asking them if they could meet with me this saturday (I will take the bus to CT) so that we can talk more in depth about the clinical trials. I thought that I would lead in with the fact that I went through all of the protocol testing and it turns out that I am not a candidate to take part and here are the reasons why. It is at this point that I tell them about the brain lesions as well as anything that they turn up on the pet scan this week. I don't think it is fair to tell them that I have to come home and tell them some news (they will think the worse and it is not fair to keep them hanging). I also don't think that this is something that I should do over the phone. We need to be face to face so that they can look me in the eye, to see that I am asymptomatic and that I am confident about the outlook for the future as well as the treatment plan. Any input would be greatly appreciated.
 
Loads of luck with the scans and my prayers are with you.
 
Steve, all of our deepest prayers go with you at this time, and we hope and pray for you in being able to overcome all of the cancer. Keep focusing on the positive, as the mind is a very powerful tool
 
You know you have all my hopes and prayers my friend. (*8*)
 
thinking about you and hoping for the best.(*8*)
 
It's been said, but I would like to say it as well - you are in my thoughts - I do hope for the best of possible news. (*8*)
 
Steve, I think your plan on how to tell your sisters is sound. This is definitely something you have to tell them face-to-face. All you can do is give them the facts, tell them what you have decided to do and how you are dealing with everything. You can't control how they will take the news, but they need to know. Good luck with the PET scan tomorrow and on Saturday with your sisters.
 
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