Maklaar13
JUB Addict
- Joined
- Jul 3, 2004
- Posts
- 1,895
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After over two years of misery I finally have a diagnosis. Some of you may already know that I have been unwell for a while. I was in the hospital, was misdiagnose with multiple sclerosis and I am legally blind due to a rare genetic disorder. I have had difficulty walking and was wheel chair bound for over a year. Pain, spasms, tremors and the latest has been speech problem, sometimes unable to talk at all. I have had several medical diagnoses over the past 30 years or so. Fibromyalgia, small fiber neuropathies, essential tremor syndrome, loss of vision and Charles Bonet syndrome. After seeing four different neurologists, my final try was to see if anything could be done about my speech problem, since speech therapy did not work. My main care provider recommended a new neurologist. Had my appointment last Tuesday. I was there for a couple of hours. He assured me that it is not MS but he told me that I have Functional Neurological Disorder. What The Fuck! I have had a few difficult days to say the least. I have a loving spouse of 41 years, he is in the medical field and knows a lot about illnesses but he nor I had ever heard of this. The condition is treated with antidepressants and pain medications. The problem is that doctors have tried all of them and nothing works, also the side effects have been brutal so those are not an option. The only treatment left is TMS Transcranial Magnetic Stimulation. The success level of the treatment is over 60 percent. The cost is around 12,000 dollars. One hour treatment five days a week for about six weeks. Not covered by insurance. Had to let this one out. Thank you. By the way I forgot to say, Fuckity, Fuck, Fuck, Fuck.
