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Kidney Failure

Commander Vimes

Commander Vimes

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I have been to the hospital tday as I have been have alot of trouble my kidneys lately, the filtration level has bee really low.

Well today the doctor tells me that my filtration level is below 10% and says that I should start dialysis, he has recommanded APD which involve having a tube put into your stomach so that you can do the dialysis at home. They are trying to book me in for surgary next week. this seems to of happened so fast and I don't know how this is going to effect me. Does anyone know any one who already has APD how has it changed their lives, has it made things more difficult.
 
Poor guy! I can't help you with info, but wish you all the best :kiss:
 
Hi there. I have not gone through this, but all I can say is to try and take it as it comes. From what I can remember from my physiology classes (I have a Ph.D. in immunology, so nephrology is far away in my memory), a low salt diet is recommended. Avoid any diuretics (coffee, cranberry juice, tea, etc), alcohol and excess sugar drinks (eg colas). If it gets to a transplant, the recommendations will be the same. But, talk to your specialist. If he/she shrugs you off, find another one. Get answers. Not knowing is worse than anything and will not help you get better. If you go on the net to get info, take it with a large grain of salt. Not everything out there is true. Wikipedia has quite accurate scientific info (or so says a Nature paper).
Best of luck.
 
Sorry...Don't know much about it...but good luck and know that you are in my prayers!!
 
Listen to your doctor and have the surgery. In-home dialysis while you sleep at night is much easier than having to go to the hospital every few days to be dialyzed. Because you only have 10% kidney function left, time is important because that remaining 10% can go pretty fast, which is why they're trying to schedule your surgery fairly soon. Since you're young, you'll probably heal quickly. Good luck.
 
I was diagnosed with bladder & prostate cancer when I was only 47 yrs old.
Now I'm 58 and as you guessed, I survived.
According to the Dr's I went to I wasn't supposed to live.
Anyway, I had a new procedure done and don't have to wear a bag - everything
was done internally.
My suggestion to you is to write all your questions down ahead of time before your next visit to any Dr.
No matter how simple the question seems, write it down and ask it or let him/her read them and answer them for you.
You get so nervous in the Dr's office that you forget 1/2 of what you wanted to ask - this way you can't forget. Don't leave until you have all of your questions answered.
Ask to speak with someone thats had the same problem that you have or ask about support groups.
Its a BIG help knowing that your not alone and it gives you the opportunity to ask others how their lives have changed since their dialysis started.
Good luck to you !
You CAN do this !!!
 
hyperion said:
Hi there. I have not gone through this, but all I can say is to try and take it as it comes. From what I can remember from my physiology classes (I have a Ph.D. in immunology, so nephrology is far away in my memory), a low salt diet is recommended. Avoid any diuretics (coffee, cranberry juice, tea, etc), alcohol and excess sugar drinks (eg colas). If it gets to a transplant, the recommendations will be the same. But, talk to your specialist. If he/she shrugs you off, find another one. Get answers. Not knowing is worse than anything and will not help you get better. If you go on the net to get info, take it with a large grain of salt. Not everything out there is true. Wikipedia has quite accurate scientific info (or so says a Nature paper).
Best of luck.
Click to expand...

Thanks for the advice, my doctor has told me alot, but yesterday it just seemed as if he was talking and not much was being retained. He kept asking if I had had any questions, I think I was in such a state of shock I just sat there saying no.
 
Thanks for the links Goula, I found them very useful, and thanks to everyone for your kind words.
 
jockboy01 said:
http://www.webmd.com/a-to-z-guides/Peritoneal-dialysis-4391

There is a site to add to Goula's.

My question would be why did they want to do peritoneal dialysis rather than hemodialysis. There are reasons that we do it, but it might be something to explore. And I would imagine that you are on the transplant list... no?
Click to expand...

They have recommended APD because it doesn't tie me down as much as hemodialysis. I have to have a few test before they decide if they are going to put me on the transplant list. they want to gwet me on dialysis first because the test can cause complications.
 
they want to gwet me on dialysis first because the test can cause complications.
Click to expand...

huh? I'm trying to think what tests these may be... anybody have any suggestions? If it were a temporary kidney failure, okay, but it sounds like it is permanent, in which case I don't see any reason to delay adding a person to the list for tests.
 
jockboy01 said:
huh? I'm trying to think what tests these may be... anybody have any suggestions? If it were a temporary kidney failure, okay, but it sounds like it is permanent, in which case I don't see any reason to delay adding a person to the list for tests.
Click to expand...


something to do with my heart, the test involves injecting some dye which can stop the kidneys from working completely. I need to have the test to see if my heart would would be able to take the strain of the transplant or something like that, to be honest I had really stopped taking the information in at this piont, and was only picking up bits
 
ah yes, that makes sense then. The dye that they use is toxic to the kidneys a bit... which is fine in normal kidneys. But in your case, it could cause them to fail completely so they want to make sure they have dialysis in place in case that happens. I would imagine the test is a coronary angiogram to evaluate the patency of the vessels in your heart. Thanks for the clarification... makes sense now.
 
My dad was gonna have home dialysis, but unfortunately, things got too bad, and after he went into hospital with organ failure, he died in 1999 at 69.

Whatever you do, stay positive. It is something you need to keep alive to get rid of the buildup of toxins in your body.

From what I remember, the home dialysis is basically feeding a tube into Peritoneal cavity, and allowing a flushing in which liquid is fed into that cavity and left for a few hours. It is then drained out later. This requires some rest time at home, and I can't recall if it's once a day or twice a day it must be done.

I remember there are certain risks involved too, like infection, so you need to be hyper clean yourself, and around the tube.

Anyway, all the best. As someone who has had family in this situation, I can understand.
 
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