Anyone else have Horton's Syndrome?

[justjw]

I have Horton's Syndrome, and I was just wondering: are there any other Jubbers who also have it ?

For those of you who never heard of it (And I sincerely hope that's áll of you!): it's headaches, but then headaches in the umpteeth degree.
http://en.wikipedia.org/wiki/Horton's_syndrome -Warning! Especially the paragraph on "pain" is not for the fainthearted, but then it is só very true!-

I have it in the "light" form where it suddenly "attacks", then 5 or 6 weeks of interrupted sleep, and then it goes away, from one day to the other.
My first experience with it was some 3,5 years ago, then again 2 years ago ("My six weeks" ended on Sept 25th, I remember it vividly!) and since it has stayed away.

 

[Fiorino]

I have the cluster headaches, for a long time wasn't sure what I had until one day was so bad I thought I was going to die, doctor had a cskan done, I have severe migrains, prescribed Inderal, haven't had any serious problems for years, but I vividly remember then and can understand why the are called sucidal headaches. Good luck, ask your doctor about trying Inderal.

 

[justjw]

Oh yeah, I sure cán imagine why they call them "suicide headaches". 6 Weeks of them is enough for you to want to top yourself, imagine having them évery single day! *shudders*

What worked for me, after I woke up to the headaches one hour into my sleep évery single night for 6 weeks, was drink a can of Red Bull! It reduced the attack from 30 mins or so, to 10 or 15.
And afterwards I'll just fall back asleep.
It's some stuff in it called "taurine" which apparently lessens the headaches. Got that tip off an Internet-forum.
(Not sure whether "Red Bull" is available in the States, it's banned in some countries, the UK one of them I believe, not sure about the US?)

But next time I talk to my doctor I'll ask him about Inderal, it might be thé one for me! Thanks for the tip!

And Fiorino: it's só good to hear you're "free" of them headaches. Hope they stay away, forever!

 

[justsimon]

I have several types of headaches, including clusters. They vary in intensity, but I've had a constant headache for a little over 7 years.

 

[theFallenGod]

My father used to suffer from these...

It was horrible watching a grown man cry and scream in pain for hours while he rode them out....

I have had migraines but never had cluster headaches thankfully....

Seeing the pain he wet through I wouldn't ever want those...

He used to take injections of Imitrex right before the onset of one and that usually helped.

 

[Alter_Ego]

Cluster sufferer here, also, my attacks will build to six or seven

a day, and last anywhere from half an hour to four hours.

I am not a man who is faint of heart, and I have an exceptional

tolerence of pain, but during the headaches suicide would be a

blessing.

Even having just gone through a bout I can't describe the pain.

Prednisone and Imitrex lessen the severity.

 

[justjw]

Eeww, now is there was óne thread I’d wished would have just faded away into obscurity without any replies, it sure was this óne!

On the one hand I find it “sad” (For lack of a better word to describe my feelings) to learn that I’m nót the “Only one in the village” (As you wouldn’t wish cluster headaches on even your worst enemy) , on the other hand it gives me strength to know that I’m not the only one!

Took a while for my GP to diagnose the cause of my intense headaches the first time around (He spent about an hour pulling books out, leafing through them, asking me questions, getting another book, again questions etc.), but finally being diagnosed as Horton’s was like a weight was lifted off my shoulders. It wasn’t a brain-tumour or something life-threatening, it was “just” Horton’s. My headaches having a name sort of them made them more “bearable” (If that is in any way possible with something unbearable)

With me, at the end of an attack, the pain just “flows” out of my body, in 5 seconds or so.
And when the pain is gone I just feel só “high”, so “elated”, so “at peace”, or something. Words cannot describe that feeling. I’m not religious, but I’m sure thát is what Heaven feels like. Like you just had incredible sex with an incredible guy, and had the most intense orgasm you ever had, only 10 times better.

Can anyone relate to that?


Thanks guys, for the heads-up on the medication, I’ll discuss them with my GP.


And y'all hang in there, yeah?! You're nót alone!

 

[babylulu]

Hey justjw . My grandmother had hortons' syndrome but got it under control (or rid of it, not sure) about three years ago.