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- - - I need all your prayer - - -

firepheonixx

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Hi all ,

I need your prayers....badly.

my boyfriend has been dianoised with AS... a spine diease...
Also called "Bamboo Spine"

I need prayers....and any info you can find on this thing, and any holistic stuff too.

Thank you all in advance
Adam
 
Sorry to hear that. My thoughts are with you.

Have you tried Googling?
 
Hey friend,
What kind of disease is this? I mean, is it treatable? Are there medications or surgeries that can help with it?

:(
 
I'm sorry to hear of your partner's diagnosis. I will definitely keep him and you in my prayers. This is what I can find on the disease. Thankfully, it does not appear to be a fatal disease

Ankylosing Spondylitis

Arthritis of the spine, resembling rheumatoid arthritis and leading to lipping or fusion of the vertebrae. Also called Strümpell-Marie disease, Marie-Strümpell disease, rheumatoid spondylitis, Strümpell-Marie disease.

Here is a good web site I found with lots of information on treatments and tips on how to manage the disease.

http://www.enbrel.com/as/understanding-as.jsp?f=7
 
Sorry to hear your news Adam :(

I hope you and your bf can stay strong together and of course, you guys have my every good wish for what may be some difficult times ahead (*8*) (*8*)

Don't be a stranger if you ever need a JUB shoulder for whatever reason :kiss:
 
there is no cure......only treatments

and can lead to wheelchair bond results......
the family is shocked beyond words
 
I´m sorry to hear of your partner´s diagnosis.
AS is a chronic disease. Check the website of the Ankylosing Spondylitis of America. They have a good number of online resources and a bulletin board for support.
http://www.spondylitis.org/
Another alternative is the local office of the Arthritis Foundation (http://www.arthritis.org/). Information and support are essential at this stage.
Best wishes to both of you. (*8*) (*8*) (*8*)
 
Adam,

My sincere best wishes to you and your partner as you learn how to deal with this diagnosis. You both are in my thoughts & prayers.

Dave
 
Adam, so sorry to hear this distressing news. Our prayers are definitely with you and your partner.....
 
My prayers and thoughts are with you both. I don't know of any sites or treatments to suggest. But I was raised to believe that prayer and faith are the two best things you can do when facing adversity. So keep positive....

(*8*)
 
I'm so sorry to hear of this. I don't know anyone with ankylosing spondylitis, but I have read accounts of it and there are treatment options.

Love and support are some of the best medicines that exist.(*8*)
 
Our prayers are with you BOTH, for you as a care-giver is just as well afftected as your man is....

I thought I would add some more information about the disease for those of us who've never heard of this disease:

Ankylosing spondylitis is a rare condition that can cause back and neck pain. It is a rheumatic inflammatory disease that affects the spine and sacroiliac joints. This disease is three times more likely to develop in men than in women and it usually occurs between the ages of 20 and 40. Although it primarily attacks the spine (usually the low back first), this chronic and painful disease can also attack other joints, tendons and ligaments, and the chest wall. Though its cause is unknown, ankylosing spondylitis tends to run in families which suggests that genetics plays a role in the development of this disease. A patient is 10 to 20 times more likely to have ankylosing spondylitis if a parent or sibling also has this condition.
Symptoms

Ankylosing spondylitis is a disease that can cause the joints between the vertebral bodies in the spine and the sacroiliac joints (which connect the spine to the pelvis) to fuse together over time. When this happens, patients with ankylosing spondylitis can have difficulty moving their neck freely because the vertebral bodies in the cervical spine have fused in a particular position. Some of the common symptoms for ankylosing spondylitis include a moderate amount of back pain and stiffness (usually over a period of weeks or months). The pain is often worse at night. Many patients say taking a warm shower or performing light exercise often relieves early morning stiffness. While the symptoms of anklyosing spondylitis can last for significant periods of time, the disease is usually characterized by mild to moderate flare-ups followed by periods of almost no symptoms. In severe cases of ankylosing spondylitis, bone spurs on vertebral bodies, and degenerative changes along the spine can press against nerves or the spinal cord, causing numbness, weakness, or pain to develop in the area supplied by those nerves.
Diagnosis

In particularly severe cases, patients may be unable to look above the level of the horizon because their neck has fused in a position of flexion, or they may develop a significant amount of pain from having a hunched over posture. Ankylosing spondylitis is usually diagnosed by taking x-rays of the spine that may reveal characteristic changes along the length of spine where the vertebral bodies have fused together. This radiographic appearance is often called a "bamboo spine", because the x-ray of the spine resembles the pattern on a piece of bamboo. Fusions between the vertebral bodies are not always seen on the x-ray of the spine, especially early in the course of the disease. In this situation, a blood test can suggest that someone has ankylosing spondylitis, because 90% of people who have this disease have a particular marker present on their blood cells called HLA-B27.

I wonder if ANY one else in his family have ever had this disease, for it's considered to be hereditery!

Hang in there my friends!(*8*) (*8*) :kiss: :kiss:
 
it's comforting to see so many positive responses and you can certainly add my thoughts and prayers as well.........in the end love conquers all........be strong and remain in the faith.
 
As has been done for me for the past many months, you have my thoughts, prayers and best wishes to get through this. We are here for you whenever you need us.
 
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