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- - - I need all your prayer - - -

Its great to see all the responses of fellow jubbers , just remember to keep strong , you are both in our minds and prayers
 
](*,) ](*,)

(*8*) (*8*) (*8*) (*8*) (*8*) (*8*) (*8*) (*8*) :cry:

You might want to consult with adidas on this matter, he is most knowlegable about health matters.

eM.
 
You will both be in my thoughts and prayers., and remember you need never be alone. from a friend on the other side of the pond. xxx
 
first ... I wanted to thank you all very much for your thoughts and prayers.

normally I would not have posted something so personal on here, But I felt like if I wrote it down and let it out, I would let me breath a little easier...and it has

I started him on a holistic treatment.....got a jucier and vegtables==
ginger,brock.,celery,carrots,wheat grass(super expensive), apples,grapes.

we are trying to take it one day at a time, but the weather is not helping
so I kinda had a episode yesterday...I try not to cry in front of him....but yesterday...i lost....to the point that I blacked-out, (which has never happend to me)
I feel better now....
Tuesday, we are heading to a blood speacilist to see how far along is this...and what can be done.

But WE wanted to thank you all again for your warm thughts and prayers !
 
lancshotpot said:
I have had AS for about 15 years now and let me assure you that it's not the end of the world, although it may seem that way now. Since i was diagnosed i have met many others with the condition but never anyone in a wheelchair, the condition would have to be severe for it to come to that.

The best treatment for AS is exercise, drugs can help if there is any pain involved, but exercise is the best way to stop it progressing. Because of this your boyfriends future is to a certain extent in his own hands, not to say that he won't need help and support, but with regular exercise he can help to control the disease and not let it control him. It can get you down at times so he will need your support and encouragement.

There is no reason why he will not go on to lead a full and fullfilling life, like many of us with AS do.

Please feel free to message me if you have any questions, stay positive,

Lee.
Click to expand...

thank you....
queston..... is there some kind of machine that I can purchase to help the
hip.....it is attacking his left hip joint....and the heating pad helps...but I wanted to know is there something else ? ? ? ?
 
You have a good advisor in Lancshotpot, and you can be assured that many of us will remember you and your friend in our prayers.
 
Ask his Doc about a referral to Physical Therapy. They will know the answers to your question and can either treat him or instruct you in treating him.

At any rate, it probably isn't a bad idea to establish a connection with P.T. from the start.

You guys are in my thoughts and prayers too. (*8*)
 
he is going to start soon.......I think thurs.
any herbal stuff you think might help ?

I went to Borders Books yest. and many books said gingers helps
anything you take that helps
 
firepheonixx said:
he is going to start soon.......I think thurs.
any herbal stuff you think might help ?

I went to Borders Books yest. and many books said gingers helps
anything you take that helps
Click to expand...

You might as well waft him with a feather for the difference that herbs and vegetables will make - also, I'm not quite sure what the evidence base for prayers is in the Tx of Ank. Spond.. I must look it up (bucco-lingual proximity). Secondly, it's not a bone disease - it's a disease that affects the cartilage around the bone - calcium won't make much difference.

Anyway...

The best treatment for Ank Spond is exercise - and plenty of it. He'll probably have more luck taking NSAIDs, paracetemol and steroids than he would from herbs, prayers and alternativists. Most Ank. Sponders don't end up in a wheelchair anyway - most just have a bit of a dicky back in the mornings.
 
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