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Pegasus69 - Archived Blog Posts

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Okay, I know that I made a post about speaking with my ex for the first time in nearly 8 years. I am blogging it only due to the significance that this had for me. As I mentioned in the very first post/poll about mailing the letter to him, ours was not a very good break up (read here for the details: http://www.justusboys.com/forum/showthread.php?t=88262).

Well, I was so surprised that he even answered the letter, and with a phone call to my sister’s house no less (her married name is one that you would NEVER forget). Now granted I listened to the message and it sounded very incoherent, but thanks to caller ID I was able to get the number and made the call.

This was not all that easy for me to do. It almost felt like the time I came out to my family, just not knowing what the response would really be. At least I found out that the reason for the incoherence is that about two weeks prior to my letter arriving he and his boyfriend broke up and I sent the letter to the boyfriends address, not his, and the boyfriend read the letter (bastard) and basically just called him and told him I had cancer, boom, no more info.

We both laughed, cried and apologized through the phone conversation. He apologized for being so crazy (his word not mine) our last year together and for me not leaving him at that time. He said if I had he may not have survived it I didn’t bother to bring up the fact that his craziness actually started a couple of years prior to his spinning out of control. He also admitted that once he got it under control a little, he knew it was time for him to go, because he knew that I would stick by him no matter what. Sounds like backwards logic, but knowing him as I do, I understand completely what he was trying to say.

We each admitted that we did not handle things the best, but that was the past. He said that when he heard that I had lung cancer that the first thought was that he would donate one of his, he then quickly threw in that he immediately dismissed that for two reasons. The first was that his lungs are probably all messed up from all the pot he smokes. He said the second was that with the way the relationship ended my body would have probably rejected it violently for self preservation. We both laughed at that. He said that he wanted to make sure that I knew that when he left me it was not because he had met someone else first (which he heard people were telling me while still in Kansas). He still loved me, just no longer in love with me. That is something I can very well understand.

We spoke of his family (and it seems I missed the best part of his family drama). He has one sister that was ultra-conservative, uber-religious and was so homophobic that she would not let us hug her children when we came to visit (I am still not sure if she thought it was contagious or that we would molest the children). I think she did allow us to visit in the hopes of converting us to straight at the minimum, because the conversations always ended up on the subject of the abominations of homosexuality. He let me know that after her husband divorced her, which essentially shook her faith in God and in her chosen religion (AOG). She did well and went back to school since she had been a stay at home mom the whole time she was married (9 years I think). She needed some way to support herself and wound up transferring to Arizona (which is where my ex, her brother is) and got her Master’s in Psychology. She also met the woman of her dreams and is now an out Lesbian. Hmm, brings the line “Me thinks thou doth protest too much.” to mind. It is funny because I am not too surprised, there were just way too much gaydar going on there.

He told me that his ex was being a dick about the breakup (changed the locks while he was at work and told him to find some place else to sleep that night). He finally found his own place and his ex decided what he could and could not have. He said that he thought that it was Karma coming to visit him. I told him that I didn’t think that was it. That break-ups are seldom easy. He said he thought that maybe it could have gone a little better than it did. He said that he tried to step outside his comfort zone to make his partner happy (he even flew on an airplane which was something that terrified him).

He sounded disappointed that I have not had a relationship since then, but that is something I was not willing to go into at that time. I just wanted to make peace with him, to know that he was okay, healthy and happy. Which, for the most part, he said he was happy. He did admit that he was very sad that we wasted nearly 8 years after 10 years together. He also wants to know if I will be able to travel. He would like to see me, which I am not too sure about. I was so completely in love with him and am just now getting closure on this. It would be too easy to get wrapped up with someone who is very familiar emotionally and intimately. But, who knows, in a couple of months I might be ready for that visit. I would like to see his face again and to hear his laugh as well. He had such a sarcastic wit and most people who met him just loved him right off. I think he is a good man, confused and still trying to deal with his past in regards to his family, but in his heart he is a good man.

This has actually taken me a couple of days to write down because I had to take time to process everything, sort through it and figure out what it meant to me emotionally. This is probably the first real positive thing I have done in the past 8 years to move on from this. Still paying for it financially, but I have come to learn very recently that if it is a problem that money can fix, just how big of a problem is it? Really?

Sometimes you just have to screw up the courage and do it, the payoffs are usually well worth the effort and the fear.

Steve
 
So, I have been in a bit of a funk lately and usually I am able to get through these fairly quickly once I have identified the issue that needs tending to. Well, I think I have figured out the issue, but I am not too sure how this is going to resolve.

I have a deeply held belief that everything happens for a reason, but we have to find out what that reason is. Well, being diagnosed with lung cancer, I have been trying to take an inventory of my life. To further explain what this means, at least to me, it is to take a very good, hard and realistic look at myself as the person that I am today. I also think this means that I need to look into the past and see where there are issues that need tending to, such as the letter that I wrote to my ex. So far that is the only thing I have found in my past that was unfinished business. I had finally forgiven my ex for the way things ended, and for the fact that they ended at all. I also forgave myself for the way I reacted as well as for some of the less than gracious feelings I held towards him.

As for the part of looking at myself in the context of character, physical appearance, self esteem and so on I have made some pretty good progress. I think that as for my character I am a good person. To me this means that I am honest, hard working, I have integrity, I am loyal, giving and slow to anger. The biggest issue that I am not happy with and really have no idea how to change is the issue of trust. Not so much other people but trusting my own judgment, especially when it comes to matters of my heart. I really don't know if I could or even want to allow myself to be put into the position of being hurt like I was before. If that were to happen again I don't know if I really could survive that again.

So, with that being said, knowing that I have these reservations about being left again, can I honestly get into another relationship that is healthy and loving? Without being able to completely trust myself, how do I try to even begin to start another relationship. I have dated a little (very little) in the past 8 years but either I learned that I wasn't all that attracted to the person emotionally or they were not attracted to me (for whatever reason).

I also am very well aware that I have issues with self esteem and my physical appearance. The physical appearance issue has taken an even greater ding since the surgery and the start of chemotherapy. I think I look far better in clothes than out. The muscle tone is shot due to the surgery, there is the issues of what the steriods are doing to my body shape. It isn't the hair issue either. Having lost my hair is no real big deal to me, but the spare tire I am starting to get is really bothering me. I almost thing that I don't want to meet someone because that eliminates the possibility of having to get naked in front of someone else.

There is also the whole other issue of just how much do I want to try and take on at this time. I am not in the best of health after all. I am trying to focus on trying to beat this disease, but there is still that little voice in the back of my head telling me that that very few get out of this alive. If any of you reading this had ever followed me around during my life you would find that as far as the really big things in life, I am not so lucky. And try as I may to keep that aspect of this disease out of my head, it is really hard to do when you feel like shit most of the time due to the treatment, not cure, but treatment. It is difficult sometimes to think that you are going to beat this when you are sitting in a room with numerous other people who are being treated with the IV's for chemo and you can easily tell that they are not doing too well. I am still early in the process.

So, with this in mind, how in the hell do I even think about trying to meet someone who I might have a chance with?

For those of you reading this, be honest with yourself and me, how much would the diagnosis of cancer of someone you had met inflluence your decision? Just wondering........
 
So, today marks the end of my first week back to work in the past three months. I was not too sure how well I would be able to handle the physical part of the job (lifting boxes weighing in at 120lbs and moving doors on my own that weigh up to 400lbs). I was surprised that I still have the physical strength to do that, but I do not have the stamina. I don't even know how many hours I worked this week, but I am guessing that it was 25 or so. I am just totally exhausted.

Everyday this week I have come home, showered, sat down for a bit and the next thing I know I am waking up three hours later. Yesterday and today I wound up going out to my car during lunch, setting the alarm on my cell phone, and taking a nap. The only problem with that is that it takes me forever to get back up to speed.

The true test I think will be next week. On Thursday I have Chemo again. Each treatment the side effects and fatigue has increased tremendously. I am not sure how the hell I will pay my bills with these short hours. My employer is being very good about this and has assured me that I can leave whenever I need, and I have done so.

I have also stopped all the homework I had been doing on lung cancer and have stopped visiting the Yahoo Group for lung cancer. With the fatigue I am vulnerable to depression, at least this much I do recognize, and have found myself wondering if what I am allowing them to put me through is really worth it. I found myself wondering if I should stop treatment and let nature take it's course. But I also know that I would not be happy unless I gave at least a good fight to get through this. I am not one to give up easily on anything. Since I have stopped going to those sites I have felt my mood increase a little, but I am just so damned tired all the time.

How sad is it that it is 7pm on a friday night and I have been in my PJ's for the past two hours? Matbe I will go out dancing tomorrow night, you never know. The guys and gals at the club I go to on the occasion that I want to be with "my own kind" have not seen me without my hair yet. Could be interesting.
 
This has been bouncing around my head for the past couple of days and I need to get it out and see if this will help me get back on track.

I am starting to have doubts about my ability to fight for my very life. Last week was my first week back to work. I managed to put in 32 hours but it felt like 80. I did very little this past weekend. On saturday I drove up to Provincetown to take some pictures and walk around, but after two hours I was exhausted. Sunday I did nothing but sleep. Here it is, Tuesday the 2nd and I am just so tired. Physically and emotionally exhausted. I woke up last night from a dream in which I was through with the chemo and radiation and was at my surgeons office and he told me I had less than a year to live. I woke up in a cold sweat and in tears. Today at work I almost lost it and left early, again. I am dreading this Thursday (chemo round #3) and the resulting paycheck from having missed two days of work (I will not be able to work friday since I usually spend the next day in bed).

I am trying so hard to keep a positive attitude, but it is so hard when you are this tired. I get home from work, fall asleep in the chair, wake up long enough to eat a light dinner (all I can stomach right now is soup), then back to bed and right to sleep, usually.

This is the first time that I have really started to doubt my ability to fight this and win. The resulting emotions are so intense and just feed each other. I am just an emotional mess right now.
 
So, I had Chemo treatment #3 today and it went fairly well :-) I was at the hospital from 9:45am to 4:10pm. It took a little longer in the infusion room beacause they think that the case of thrush has settled in my throat.
:( They gave me some medication for it and a prescription that will get filled torrow. Right now I am just very tired and the stomach, it is not feelig so good right now :grrr: . I should be fine until 8pm or so and then on to the pills. At least I can now foresee the direction that stuff is going and how to be more proactive to the upcoming symptoms. ..|

(!) I am also in a better state of mind, and am ready to fight again. I just needed a little break from fighting and allowind myself the time to ask those inevitable "What if?" question. You know, What if this doesn't work? What if this coming birthday is my last? What if it does come back, what will you do then? What if, what if, what if....? #-o

Well, I actually came up with some answers to those "what if's". And it feels good to have confronted them and developed, at the least, a contingency for most of the "what if's". Now to just get through work next week and I think I will be find after that for a little while at least.

Be well my friends!

Steve
 
Okay, so I spoke a little early about the ease of the third round of chemo. My organs from the stomach down are just all messed up and out or whack. I am also tired all the time, but I kind of expected this to be the case. Work has been much more of a challenge than I thought it would be. I am not just tired but I am also very uncomfortable physically. The thrush is still a problem too. Thankfully I can no longer see it on my tongue or in my mouth, but it feels as if I have something stuck in my throat. On a few occasions I have choked on food while trying to swallow and have difficulty swallowing my pills (which has never been a problem).

So, my next step in this is that on the 23rd of May I will have a gastroscopy done. They will run a scope down my throat and also into my stomach and take a look at what is going on. I will be very honest and say that I am so sick and tired of being poked, prodded, stuck and cut. The official term is Esophagitis, which means something is going on but they do not know what, very generic. But possible causes could be thrush, damage due to previous reflux disease, ulcers, damage from being intubated during surgery.

Other than that I am doing okay. Emotionally I am doing well. I am just listening to my body and sleep when I feel the need. I will probably do much better once the throat thing is cleared up and I can eat more nutritionally complete meals rather than all the soft foods I can figure out.

The final news to all of this can take the spin of either good or bad, depends on which side of the blog you are on. I have started to loose my voice. I has gotten very raspy (as in Harvey Fierstein). This has been difficult only because I have wanted to try and get into doing voice overs, and have even taken classes. I just hope that this is temporary and that my voice comes back. I will admit that I do have, normally, a very nice voice and have been given cards from advertising people telling me to send them a demo tape. Well, those things are not inexpensive to make, so I have never done it. As for my coworkers, some of them think it is hilarious that I loose my voice after half a day. I am a very verbal individual and this is killing me not to be able to throw around my sarcastic wit and quick comebacks.

Well that is about all for now. Will update this as the need or desire arises.
 
Okay, I have no idea what kind of mood I am in right now. This is something that I have never experienced before. I feel a little lonely, a little isolated, but at the same time I feel calm, relaxed, content, and yet a touch of frustration because this is just a mix of emotions I have never had. I think this is the test of the whomever's to see what I can learn, or have learned. I have learned to embrace the loneliness and the isolation. I am glad that they are still there with me, it means that I still want more, that I still care about that part of my life. The contentment is been a gradual byproduct of all the issues I've dealt with before. The calm and relaxed part is that I have picked my battle this year and that is the cancer! Everything else is on hold for the moment. I will entertain the idea of a relationship after the treatments and the recovery from radiation. I will examine my career once the heat is off on this issue so that I can use that focus and energy on something else, whether it is with my current employer or if I have to go elsewhere. But those issues are for some future date. Right now I am living for today, focusing on today, and saying thanks for another day. Regardless of the outcome of all of this, I am a happier, calmer and more patient person. I see so much more in the little things we see and do everyday, with full realization that it is the little events and incidentals that build the majority of our lives and experiences, they do more than give the occasional "awe" response. If you amass these incidental experiences then everything seems richer when you get more and when you are getting less, it doesn't seem so bad.



Maybe I am being too philosophical through this experience, or maybe it is something that I had no conscious control of and is just a natural response to situations life this. Then again, it could just be that I am emotionally too tired and physically to exhausted to be able to do much more on this.
 
Well, saw the gastrointerologist on thursday about my loosing my voice and having difficulty swallowing. The esophagus is inflamed and there is damage at the base of the esophagus from reflux disease (now on prilosec, along with everything else). Also found that I hace shotskies ring (or something like that) in which one of the rings of the esophagus is too small and makes swallowing difficult, so he expanded the whole esophagus. He also took some samples to biopsy, but does not expect to find anything.

I also had my oldest sister and her husband come down for the day to visit me. They just wanted to see how I was doing and left satisfied that I am doing well. The visit was too short but it was nice to see them. It is also much easier for them to come see me right now than for me to make the trip to Connecticut.

I also got another call from my ex last night and it was nice. The conversations that we are having should have taken place while we were still together, but they are happening now and I do believe that it is better late than never. My biggest concern is that he is happy and healthy. He says he has never been happier (he equates it to his recent breakup with his new ex). He his finally seeing a psychiatrist and is now getting the right therapy and medications to control his problems. So, his emotional health is well on it's was too. I think that we have spoken more in the past month than we did our last year together. This is all so good. It does not matter to me that we are overr, or that we had many major issues towards the end of the relationship. His health and happiness is so important to me. I will always love him and he will always have a special place in my heart. We were getting all philosphical and shit on the phone and he asked me about being diagnosed with cancer and what it has done to me or what it means to me. I told him that I am just trying to be a better person, to be nicer to everyone I come in contact with and to be the type of person I would be proud to be. He told me that he didn't think I could be any nicer and that I do not have a mean bone in my body. He said that if it were not for me, he doesn't think he would still be alive ( I did cry a little over that comment). I think we have both grown and matured over the past 8 years.
 
So, this past Thursday marked a big step in this fight against cancer, the last round of chemo. All I need to do now is keep going for my weekly blood work for the next month and then a followup with the medical oncologist, which is one week after I start my radiation. So far I feel fairly decent, a little tired but that is expected. Only nausea one night and I actually made it to work on friday, even if I could only stay for a couple of hours and then had to leave due to the tiredness and nausea. My spirits are good, my outlook is realistic yet positive. I am learning something new everyday about myself and about life. I awoke this morning, Saturday the 27th of May (tomorrow I turn 46), and it was very early, fog so thick that you couldn't see further than 20 feet, and I thought it was just so beautiful and serene. It is now 9:30am and the fog is starting to lift, the birds are singing, and the sun is trying it's hardest to break through the clouds and remaining fog. No matter what, I have decided that this is going to be a beautful day, at least to me. :D
 
So, this round of chemo has hit me pretty hard. Every joint in my body hurts and I have absolutely no energy or appetite. I am now also experiencing some pain in my abdomin/side. I am going to give it a few days and see if it gets any better. If not then I need to call the oncologist and see what is going on. I am thinking that this is chemo related only because the scars from my surgery have been hurting like hell since friday. The third treatment I had some scar pain also but it only lasted a couple of days. On the bright side though, Sunday was my 46th birthday and I will admit that 6 months ago when this all started I had no idea if I would see 46 or not.
 
So, I am done with Chemo and am ready to start radiation tomorrow. I am feeling better even though my voice sounds like crap. People have a hard time understanding me on the phone, and forget going to a drive through for my morning coffee. I also have to be right next to whomever I am talking to or they have a hard time understanding me. With all of that said I really do feel my energy coming back. I have lost about 10 lbs, but the doctor is still very pleased with my weight, which is about 168 now. I am not too concerned about the radiation treatments other than wondering how they are going to affect me once I get 2-3 weeks in, especially in light of the issue of my throat now.

I will admit that there are times that I wonder if this is all an exercise in futility, if I am going to beat this insidious disease called cancer (the small "c" is intentional) since the odds are not on my side. I have never really been one to beat the odds in anything. But for the most part I remain hopeful and positive. This is a scary time for me due to the simple fact that after the radiation it is a wait and see situation. We are doing everything that can be done to kill this disease but after this is done, what next if it comes back? I believe in being proactive, rather than reactive, to life. But this is very much a situation in which we need to wait and see. As long as I am going through treatment I feel as if I am actively involved in trying to determine my destiny and the outcome of all of this.

I still try to find the gifts that have come out of this experience. I try to hold my head high during this time, but there are times I just want to curl up in bed and hide from the world for awhile. I also have this extreme urge to just take off, to run away from here and see places and people that I have never seen, or those people that I have not seen in a very long time. I know that right now that is not prudent nor practical. But, just in case, I do have a plan if I ever get the news that "it doesn't look good." Just to give a heads up to some of you.... Watch out Australia, I have applied for my passport and would head that way without any hesitation. R******a, I would watch you play, no matter where the game is held, and hold you to the message you sent me just yesterday. I would also head to Arizona and visit my ex and hug him one more time. Let him know that he has been loved for a very long time, and that love has always been unconditional.

But, for now I am going to live for today and today alone. The past is done, the future has not yet happened, all that any of has is today. That is the most important gift I have been given and I will not piss it away thinking of "what if's" and harboring regrets. Today is a beautiful day and I will enjoy it to the fullest.

I would also be remiss if I did not thank all of the jubbers who have sent me messages and left comments on my blog as well as my posts. You have given me comfort, support and encouragement. For that I will always be grateful, as well as this site for giving me the outlet to try and deal with the emotions of this experience.
 
So, I am now almost done with my second week of radiation treatments. So far it has been much easier than the chemo, but I am starting to feel the effects of the radiation. I am constantly tired and get home and eat dinner by 4pm and am normally in bed and asleep by 6 pm. I am awake, thanks to my internal alarm clock by 4:30 each and every morning. By 10am I am beat already and it takes quite a bit to make it through the rest of the day. I still have very minor reddening of the skin on my chest and back, but I am starting to get a little discomfort swallowing and have some pain in between my shoulder blades. If this is what it takes for me to get back to good, then so be it.

I am starting to let my hair grow back in now. Granted it is a little sparse, but I will keep it clipped very short until it all catches up. As it stands right now the jury is out on whether it is coming in as very blonde or white, it just isn't long enough to tell just yet. My personal thoughts are that it will be coming in white as snow. So that is all for now and we shall see what the future brings.

Love you all

STeve
 
Well, I awoke this morning at 3am with this searing pain in my throat and less severe pain along my left ribs and in between my shoulder blades. I tried a glass of water as I was thirsty and never felt that kind of pain. This is making a sore throat seem like a little inconvenience. I am so tired that I go out to my car during my lunch hour and sleep for 45 minutes. We have also been running about an hour behind schedule at the treatment center and have found myself falling asleep in the chairs while waiting.

It figures that this comes right now as I have an invitation to join some friends this weekend in Provincetown to do a littel partying. I hate to say it but I think I will have to pass. They are there for some fun and I don't want to be a wet blanket and slow them down. Plus, the girl I know who is going up there is going with a friend of hers from Florida. He is still struggling with the choice of whether to come out to his family or not. This is also his first time going to anyplace that is so openly gay in his very short 23 years. He needs to have a good time and now be slowed down by me, and she needs to be able to keep up with him to keep him safe and out of trouble. I have a feeling he will much be like a 5 year old in a candy store.

Well, might as well jump in the shower and get ready for work. Thanks for listening to me rant and get some of this out of my system.

Hope everyone who reads this is doing well and tells everyone they love that they do love them each and every day.

STeve
 
So, today marks my first day out of work under the FMLA. Went to the hospital and got the contact info for the social worker who will type up the note from my doctor for work and who will also speak to MetLife about the disability portion. I am hoping that this will kick in under the previous disability claim, then I will not have another two week waiting period, otherwise time will be very tight for a month or so.

I will admit that I am tired of having my life dictated by this medical issue as well as the insurance companies. But the light at the end of the tunnel is that the 18th is my last treatment for radiation therapy. On the 17th I will have another CT scan done for restaging of the cancer, the radiation oncologist will give me the results on the 18th and then on the 20th I go back to Boston for a follow-up with my surgeon.

I am very nervous right now about the results of the CT scan, but I will just have to deal with it. Part of me says that I have this beat, the other part of me says to be ready for bad news. My intuition is usually right about such things, but since this is a mix, I have no clue. Well, it is about time for "another" nap. I will update this thing again with some thoughts later, provided I can remember what they are.....
 
Well, the countdown is beginning. Two more rounds of radiation, a CT Scan on Monday with the results on Tuesday after my last round of radiation. And right now, I feel so apprehensive as well as very much alone. I feel more alone right now than I ever have in my 46 years. I know that at this point I have done everything that can be done to beat the cancer, but... And that is where the loneliness comes into play. I have had great support from my friends and family, they have been very encouraging and constantly compliment me on my attitude and how well I have tolerated all of the treatments, but none of them want to talk about the what ifs of the whole situation. I know that it helps to stay positive, but I am only human and have my moments of doubt, and these past couple of days have been a very long moment.

In some ways I am glad that I am single right now as this major event is playing out in my life. I don't know that I would want to put someone else through this with me. But then on the flip side of the coin, I feel as if there is no one there that really knows me. Probably the one person who knows me best is my ex, but our renewed contact is a little to fresh for me to try and talk to him about this, he never dealt with this kind of stuff all that well anyway.

It would just be nice to be able to talk to someone about the fears and doubts. It would be nice to have someone to hold me and just let me cry, which I have yet to do for the past 8 months. It would be nice to be able to talk about these fears that have been creeping in without them trying to "fix" it. Telling me that it is going to be okay, that I will beat this, so on and so forth. I really think it would help to be able to talk and just have someone listen. I don't expect anyone to say they understand, since everyone I know has never had to deal with this, and without going through it yourself, how could someone ever understand the emotions and thoughts that run through the mind.

I know that being so tired has had a hand in this, I tend to get very introspective when I am this exhausted. Since I stopped working I have been averaging close to 16 hours of sleep a day, which is good because I know my body needs it, but there are still those 8 or so hours that I am awake that out of nowhere the thoughts creep in.

I am not depressed or anything, just very pensive about the upcoming week. Maybe this is my way of trying to prepare myself for the unknown. I am not on a pity party here, that is not what this is about. I have not had an easy life, and that is just the way it has been for me. I think that in some ways the past has prepared me for the present situation.

I am proud of how I have dealt with all of this so far, I have accepted the situation, dealt with the treatments and side effects of the medications and radiation, I have held my head high and forged ahead. But it still comes to a point where I just want to be held, to have a set of strong arms hold me tight, to make me feel safe, secure and loved. I know that I am rambling, and that my fears are premature since the test has not been done. It just bothers me that there is this nagging doubt that keeps creeping in. Unfortunately I get these "feelings" about things and situations and they usually turn out to be right. I am just having a hard time trying to focus on the times that these feelings are wrong. I so want them to be wrong this time.

I know that I am beginning to ramble and it is probably a good time to end this case of verbal diarrhea. blogging on this website has been the best form of therapy than any psychiatrist or psychologist or medication, short of the anti anxiety meds, which I should probably go take a "chill pill" as I have come to call them. Anyone who reads this, be well, be kind to yourself, be good to others and be good for others. And if you read this, thanks for slogging through this.

Steve
 
Well, it finally happened, I finally broke down and cried for the past hour. Not little tears running down my cheeks, but gut wrenching, throat tearing sobs. These were tears of joy, fear, frustration and relief all in one. I know that I am not out of the woods by any means, but I feel like I have found the path that will get me out as long as I and my body stay on the path and forge ahead. My odds are still against me, but I am more than a number or statistic. I am an individual who has a very strong will to live, to grow old, to fall in love again, to dance at my neices weddings next year and the year after. I like to think that all the shit I went through during my very young years on up to present day were for this very reason. To give me the inner strength and fortitude and resilience to persevere, to forge ahead with my head held high, my eyes open and to maintain an awareness of just how fragile life really is. I will vow to myself that the lessons I have learned through all of this so far shall not be forgotten, that I will remember just how blessed I really am, even when times are difficult and life seems a little dark. I promise to myself that I will embrace every moment as an opportunity to celebrate life each morning when I awake, I will do my best to help my fellow man through whatever they may be dealing with, that if I cannot inspire, then to support and empathize. I shall not be so quick to judge others or myself. I will live life the way it was meant to be lived, with happiness in my heart, and a bounce in my step. I resolve to make everyday a good day, a happy day and a positive one. I want to make sure that anyone that I come into contact with walks away feeling better about themselves and their life. I am only one person, but I can make a difference and hope to do so.
 
July 26, 2006

What a day it has been, and it has all been emotional. I have been on the edge of tears for most of the day and it is just wearing me out. I think I know what is going on, but not too sure.

I think first of all that I have had too much time to think, being out of work for the past week and a half. I am thinking of the finances of not having an income for two weeks and still needing to get some prescriptions refilled, needing to get my car into the garage to figure out what is going on with it. I know that there is a problem with the transmission since the fluid smells burnt and it is having difficulty shifting into second (automatic). I am also still getting more and more medical bills coming in, and have yet to see anything from the cancer center for the chemo and radiation treatments. Right now my out of pocket medical expenses are close to $10K. I am also now unable to pay on my student loan due to no income at present. Granted this Thursday my short term disability insurance will kick in, but that is paid at 66.67% of my normal pay, and I will need to pay my medical benefits out of that.

Then there is the whole issue of my friend who died last week. I went to the memorial service last night, and there were so many people there. I knew she was a special person, but this brought it all into perspective. She loved life but, she knew how to love and she was not short on being loved in the least. She touched so many lives.

That then brings me to my own self. It makes me wonder if I am doing all that I can to be a better person, or to have a positive impact on the lives of others. I wonder if there is something else that I am supposed to be doing.

I also, of course, am thinking about the whole cancer issue. I try my best but sometimes the statistics keep jumping out to me. The whole issue that, statistically, I have a better chance of not being alive come the year 2011 (the chance of my being dead at the end of 2011 is 86%) brings the previous paragraph to the forefront even more. I am doing my best to not allow those statistics to define my chances, but I am only human. I wonder what makes me so special to be the one to beat those odds. I am thankful every morning that I wake up and my feet hit the floor, and at the end of the day I am so thankful that I have had the opportunity of living another day. The death of my friend does remind me that we have no guarantee in this life. We never know which day will be our last. I could just as easily die in a car accident as I could from the cancer.

I think that I am just physically, emotionally and mentally tired. The past 8 ½ months have been difficult to say the least. I have learned much about myself and of others in this time. What I have learned about myself has not always been all that pleasant or flattering. But there are some things that I have learned that have just surprised me as well. I am not trying to throw a pity party here, I am just try to get some of this crap out of my system. I know this is stuff that I will need to deal with occasionally as long as I have to worry about the cancer coming back. But I will deal with it. I just wish there was more that I could do for others. I wish there was something I could do with this experience that might help others. I guess only time will tell.

Steve
 
Well, this weekend has been rough so far. I am a mess waiting for my appointment on Tuesday with the NeuroSurgeon for the lesions they found on the MRI. I spoke with both of my sisters this weekend and one of them knew that there was something wrong (I just told her that it was due to the news that the house is going to be put on the market today). I just don't feel right saying anything until I have more to tell them.

What sucks is that I am suspect of everything right now. For example, yesterday evening I went to a friends for a party and I was stumbling on the stairs (did not have anything but water to drink). This morning I have had some tremors in my right hand. I have also noticed that my typing has been really bad also. I like to think that this is all due to nerves and preoccupation, but a small part of me wonders if these are symptoms of the lesions on the cerebellum.

My ex even called me last night and I found myself keeping this information from him. Sure, there is an emotional attachment, but not so much that I would want to "protect" him from this type of info.

I have also started to wonder about this generalized "discomfort" that I have experienced the past week in my groin area on the left side. I think that I will bring that up to either the NeuroSurgeon on Tuesday or the Oncologist on Wednesday. I don't know what to make of anything anymore. It bothers me that I have this shit inside me growing and I feel totally powerless about it. Before, with the lung cancer diagnosis, surgery and treatments, I felt as if I could and would beat this. But now I am not so sure. I am just a ball of emotion right now and feel very raw and vulnerable. Okay, that is on the blog now, let's just see if this will help ease the nerves.
 
So, it has been a week since we found out that I have two lesions on the cerebellum of my brain. I was referred to a Nero Surgeon here locally on the cape. At first they said that it would be 3-4 weeks, I called my radiation oncologist and they said that was unacceptable and got me scheduled in for today. So, I show up for the appointment and they tell me that the Dr. has been called into surgery and that they have rescheduled me for September 21st. Called the radiation oncologist again, and the nurse said that this was unacceptable, again! I just emailed the surgeon who did the surgery back in February and told him what was going on. He has a name of someone he uses in Boston, so he is going to get me the referral.

What sucks about this is that I have not told my family, since I would like more information so that when I drop the bomb of this new development, that I can have some answers for them. I am gong to visit the family this weekend and don't know what the fuck to do. Do I tell them, and leave them wondering what this all means? Do I wait and tell them once I have more info on what this means and the options that I will or will not have? I am more inclined to not tell them and just suffer the wrath of two older sisters for not saying anything earlier, but I just don't know how brave of a face I can put on while I am with everyone.

I am not happy with this situation at all!

Rant is no where near over, but this will have to do, since i cannot figure the right words to express the level of frustration and fear that I have right now.

Steve
 
Well, the CyberKnife procedure is done and I am totally wiped out. I know that it is the anti-seizure meds that is doing it to me. For the first time in many years I overslept this morning, sleeping through my regular alarm as well as the alarm set for my meds.

I am able to make it about 6 hours at work and that is about it. I have been taking the cab in to work (since the buses don't run that early around here) and then take the bus home. Today the bus took 2 hours since I missed it by 5 minutes and it only runs hourly.

I am doing well enough physically, but just not up to posting right now due to the fatigue. No headaches, no dizziness, a little nausea but nothing I can't handle.

I have a follow up the end of the month with another MRI as well as an appointment with the doctor who first noted that there was something wrong with the xray that was taken for what she thought were disk issues in my back. I feel as if I am coming full circle in this experience and wonder which way the road will go from here. I am tense, I am cautiously optimistic, I am tired, and I just want a diversion from this journey I have been on.

On a side note, I will be getting my car back this weekend. My brother-in-law changed out the transmission with a used one that has 3,000 miles on it, a new radiator (since it was the transmission cooling tube that developed a pin hole leak and allowed anti-freeze to go into the transmission). He has also replaced all the hoses, all the belts, has pulled the brakes, turned the rotors and replaced the brake pads. How do you find a way to say thank you for something like that? I feel unworthy and I just wonder how I am ever going to make this up to them for the initial expense as well as his hard work!
 
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